Sorry to hear about the hypertrophic cardiomyopathy in the family. I hope you will consider meeting with a genetic counselor to discuss the family history. There are tests that can be done to identify specific gene alterations to explain your family history. This is different from the information you received from promethius Specific genetic testing can provide great benefit to you and the family.
You can locate a genetic counselor near you on the following website www.nsgc.org
Choose “find a genetic counselor” and take it from there. If you need assistance please reach out.
Best of luck
Shelly Levin, MS, LCGC
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