Vilna Gordons with hypertrophic cardiomyopathy (HCM)? #dna

Jay L Gordon

In researching my Gordon ancestors, I've found what I think is evidence of familial hypertrophic cardiomyopathy as far back as my great-grandfather. I'm writing here in hopes of connecting with others related to Gordons from Vilna (and specifically Malat/Moletai) who have HCM in their line--  there are so many Vilna Gordons, I thought it might be one way to sift through them and discover previously unknown connections to my own line.
Here's what I have in terms of evidence:
- My father died suddenly at 43 in 1985; the cause of death is listed as "cardiomegaly." Although at the time of my father's death, the term "hypertrophic cardiomyopathy" was not discussed that I know, I've uploaded my DNA file to Promethease and the mutation for familial HCM was prominently flagged. So I have concluded that he had HCM and that I carry the gene (I and my kids have been tested and none of us has the actual condition itself). 
- My dad's dad died of emphysema at 60 in 1969, but I have confirmed that he had heart problems, once may have had a heart attack, once fainted at the wheel while driving, etc. I've concluded that he must have had HCM, as my dad's mother had no signs and only just died in December two days before her 100th birthday.
- My great-grandfather Khaim Gordon is listed in JewishGen as having died in 1919 at the age of 37 (b. 1882) of "angina pectoris." That means only "chest pain," but death so young of a heart-related condition clearly fits the pattern, so I've concluded he likely had it as well.
So, if you are a Gordon or related to Gordons with HCM, please feel free to contact me. I have additional information about my Gordon ancestry (although not a whole lot) that may be useful.


Jay L Gordon

Richard Gordon

Good Morning Jay,

Most of my family have survived into their nineties so probably do not suffer from hypertrophic
cardiomyopathy. I’m very sorry to hear that your family does. 
I am searching, in vain so far, for
my grandfather’s family. He left Libau c1884 for Ireland.
I’m not convinced that those listed below are related to me but their details are as follows:
Davids Gordons born 16/12/1908 Liepāja, son of Sroels and Leja, died 29/01/1939 in Vilna
of liver & lung cancer (whilst my grandfather died here, Northern Ireland 1946, of 
carcinoma of the bladder.)
Death notified by Leo Gordons, son.
Jette Gordons born 1887, Liepāja, lived in Riga. Don’t know relationship between Jette 
and Davids but his death certificate is included in her file.

Richard Gordon.
Londonderry, NI, UK

Shelly Crane

Dear Jay,
Sorry to hear about the hypertrophic cardiomyopathy in the family. I hope you will consider meeting with a genetic counselor to discuss the family history. There are tests that can be done to identify specific gene alterations to explain your family history. This is different from the information you received from promethius Specific genetic testing can provide great benefit to you and the family.
You can locate a genetic counselor near you on the following website
Choose “find a genetic counselor” and take it from there. If you need assistance please reach out.
Best of luck
Shelly Levin, MS, LCGC
Genetic Counselor
Northern California

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